Lung(s) Transplants

Information

For those who have received one or both lungs. Site is open to anyone who have received a lung(s) along with another organ. Caregivers are also invited. We ask that you share your experiences and be as positive as possible in your comments.

Website: http://transplantfriends.com
Location: transplantfriends.com
Members: 86
Latest Activity: on Friday

25 members like this

Lung Transplant links to visit

Bill, shown in the above photo created this group.

Boot Camp video of tx recipients

Lung and Heart Transplant Forum on TransplantBuddies

Share Your Story on TransplantBuddies

Invite Your Friends to Join us- click here

Discussion Forum

fatigue with chronic rejection

Started by joyceg. Last reply by nicole on Friday. 7 Replies 0 Likes

Nicole, I am going thru the same thing and am in chronic rejection after 3+ years, which I wouldn't change at all. but I am back on 02 which is kind of hard to take if I dwell on it, so I don't. Have no energy and really no motivation and its hard…Continue

5 Year Survival

Started by Jay Lackritz. Last reply by Kathryn Flynn May 7. 22 Replies 1 Like

When I was pre-transplant, and discussing the whole idea of getting a lung transplant, everyone, everywhere, constantly told me that half die within the first 5 years. Many people said that you should try and wait as long as possible, because you…Continue

Tags: mental, 5 year, survival, Lung

Introductions

Started by Hostess Rise'. Last reply by Judy Apr 7. 24 Replies 2 Likes

Hi, I am Rise' and I had a double lung transplant almost six years ago. I cannot believe it has been that long. Life is going well for me. Thank you Bill for creating this group. Hopefully more folks will hear about it. Blessings,Rise'Cystic…Continue

Ex-Vivo Lung Transplant Procedure

Started by Jay Lackritz. Last reply by Kathleen Apr 4. 3 Replies 2 Likes

The Human Ex-Vivo Lung Profusion System that was invented in Toronto is being used at more and more hospitals around the world. In the US, there are 5 (or so my memory tells me) transplant centers running trials using this procedure.Here is an…Continue

Tags: Profusion, Lung, Ex-Vivo, Lung Transplant

Tattoo's

Started by Kelly. Last reply by Lola Sharpe Mar 30. 19 Replies 0 Likes

Hi all, I just celebrated my 4th anniversary on January 18th this year for my double lung transplant. I mentioned to my doctors that I'd like to get a tattoo. They don't approve even a little. I know that this shouldn't be such a big deal to me,…Continue

Low grade fevers

Started by beth. Last reply by Lola Sharpe Mar 29. 2 Replies 0 Likes

Hi, my name is Beth. I am 37 and am coming up on my 2yr anniversary for my double lung transplant. I have scleroderma which led to pulmonary hypertension and heart failure, which is why I had the transplant . My lungs are doing pretty good, one case…Continue

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Comment Wall

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You need to be a member of Lung(s) Transplants to add comments!

Comment by Rachel on May 20, 2012 at 7:31pm: patient assistance has helped me alot!!!!!! Every thankful to them. I have medicare (schedule d) for scripts and still I couldn't afford to pay for my prograf, mepron, nexium, and valcyte. I was approved for all four of these meds. Me verrrrrry happy.

Comment by DebbieK on May 20, 2012 at 2:37am: http://www.myrxadvocate.com/ prescription assistance if you don't have ins. or medicare.

Comment by Kathryn Flynn on April 30, 2012 at 6:35pm: Good luck with your work search, Cindy!

Comment by cindy on April 29, 2012 at 3:17pm: Glad to hear your back to work hope it goes well Iam also looking for work take care Kathryn

Comment by Kathryn Flynn on April 7, 2012 at 1:12pm: Happy birthday, Cindy and happy fourth, Ken! Carole= six was a wonderful age!!

My best, Kathryn

Comment by Kathryn Flynn on April 7, 2012 at 1:09pm: Congratulations Vicky!!

Comment by cindy on April 6, 2012 at 2:48pm: Thanks Carole HAPPY BIRTHDAY toyou HOPE you have great EASTER STAY HAPPY and HEALTHY

Comment by cindy on April 6, 2012 at 2:42pm: HAPPY BIRTHDAY to you Vicky sounds like your going strong its always good to here from someone who been around for a long time gives us newbe lots of hope.

Comment by Vicky on April 6, 2012 at 2:14pm: Happy Birthday Ken & Cindy.I celebrate my 13th Anniversary of my Double Lung transplant tomorrow.I was actually bleeped 13 years ago at this time (7pm) today but as i went down to surgery after midnight my Anniversary is down as tomorrow.I am doing great and have a lung function (FEV 1)of 85%

Comment by Ken Carrell on April 6, 2012 at 10:29am: Hello Carole:

Thanks for the birthday wishes. And if you are a Christian what a way to celebrate Easter and your new life!! Even if the days don't coincide this year. Enjoy your time with your husband, my Wife and I have a whole new attitude about our marriage and know there is not a day to waste.

Stay happy and healthy.

Ken