This group is a place to discuss all issues related to Kidney-Pancreas transplants.

Members: 82
Latest Activity: on Wednesday

Discussion Forum


Started by Tracy. Last reply by TVCARMAN Feb 27. 16 Replies

Hello~My husband is on the waiting list for a kidney/pancreas transplant.    We have been waiting about 2 1/2 years or 850 days (but who's counting?!)      He had to go on hold for a variety of reasons, but is now back on the list.     We are told…Continue

Rising a1c. ///almost 16years post kidney/pancreas transplant

Started by Thomas. Last reply by Thomas Jun 7, 2013. 2 Replies

IN September,my a1c was 5.5. In December 5.7 my latest is 6.0(June). Even thou my fasting sugars are still the same 89 to 93. I have not spoken to my dr yet,but getting nervous my pancreas my be starting to fail. Has anyone else had this?


Started by Jane. Last reply by Jane May 18, 2013. 10 Replies

I'm post KP tx 1 1/2 years. I have a stress fracture in my foot that is slow to heal (since August!>I am tired all the x. I would take four hour naps, but I work FT!I HAVE GAINED WEIGHT, DUE TO PREDNOSONE & lack of exercise since the foot…Continue


Started by Jane. Last reply by livecam May 12, 2013. 5 Replies

Since my KP TX, I have felt like I have low blood sugar a few times. Three days ago I got the symptoms; hunger, sweaty neck&back, dizziness, tiredness, all extreme, wiping me out. I had to sit down at grocery store for 1/2 hour, eat candy and…Continue

Tags: sugar, blood, Low


Started by Michael. Last reply by Shawn Apr 7, 2013. 19 Replies

I have already had a kidney transplant, and now the doctors would like me to have a pancreas transplant. I would be curious to hear from others who have had a pancreas transplant - what was the surgery like? What was your recovery like? What was the…Continue

What's up with these meds?

Started by Kristy. Last reply by shan Jan 5, 2013. 16 Replies

So I almost 3 months out of a pancreas only transplant.  I feel like I'm doing great, my pancreas is doing great. . . . Lipase and amylase and glucose levels are great.  HOWEVER. . . everything else is falling apart!  I was anemic proir to…Continue

Blood Sugar Testing post transplant

Started by Chris. Last reply by Chris Dec 1, 2012. 14 Replies

I was curious, do any of you still test your blood sugars after having your transplant? In the begining they wanted me to do it atleast twice a day. Now they don't even ask how my blood sugars have been, but other doctors do that are associated with…Continue

transplant drug

Started by Donna. Last reply by Lazaro Nov 19, 2012. 6 Replies

I knoww someone who had a kidney transplant who went off all his meds after developing lymphoma. He was on chemo which basically shut down his immune system so he didn't need the meds then. Since stopping chemo, he has not started back on the meds.…Continue

anurysm after pancreas only transplant

Started by jerilynn. Last reply by Hostess Risé Nov 10, 2011. 1 Reply

i received pancreas only transplant on 01/02/2003. i had diabeties type1 for 17 years. the transplant saved my life, just other problems, ebv and then discovered anurysm where the vessel going to my new pancreas has a anurysm. taking 1 day at a time…Continue

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Comment by Sharon on August 11, 2013 at 3:22pm

Hi my name Sharon I had a kidney transplant July 2007.. I losted my kidneys because of PKD and was on dialysis for five years before my transplant... Some of my numbers aren t that good right now but im hoping my kidney will last for a few more years...   Hoping for the best!!!!

Comment by Lorrine on May 9, 2013 at 4:09pm

I had a pancreas transplant April 18, 2008 and Kidney transplant August 26, 2004. The kidney was from my sister-in-law got pancreas off list. The kidney is doing ok i have two cysts on kidney its new for me. Pancreas is trying to reject they up my rejection medicine. I hope and pray that it helps. Everyone Take Care!

Comment by ferni on July 10, 2010 at 2:59am
I had a KP trans 2005 doing good but I have to go in every three mo. for blood removal to reduce my red blood cells 1.5 prograft and 250 cellcept 5 presnisone dose anybody have that problem dont know if posting in the right spot
Comment by Caroline Luck on March 22, 2010 at 2:33pm
Hi everyone, its great to see so many people doing so well|! My name is Caroline and I had my kidney and pancreas transplant at the John Radcliffe in Oxford in the UK in March 2007. I have been really well (although had to have a native kidney removed last Feb due to infection). I am currently trying to get pregnant and would love to hear people's experiences. Hope you are all wellxx
Comment by Claire on March 13, 2010 at 12:14pm
Today is my 11th anniversary of my kidney & pancreas transplant. Congratulations to you Marcia for the length of time that you have had your transplant for - that's amazing!
Comment by Marcia Simon on March 13, 2010 at 8:55am
My name is Marcia. I am the old timer in this group, I see. I had my kidney/pancreas transplant at the University of Miami in 1994 and am going strong with these same organs. I was the 17th kp tx performed there at that time. I had diabetes for 32 years and was on dialysis two years at the time of the transplant. I work full time and am enjoying an active, full life!
Comment by Chris on January 28, 2010 at 9:26pm
Hi, I'm Chris and I had a kidney and pancreas transplant. I had my transplant on December 3, 2000. I was type 1 diabetic at age 7 and had rennal failure at age 28. I was acidentally taken off the transplant list by mistake because another person with my name had a transplant. However that may have worked in my favor because my transplant is still going.
Comment by Claire on January 28, 2010 at 6:00pm
Hi Katie - No, I don't think so. My BP went up quite a lot in the last few weeks and he was delivered by C section at 34.5 weeks weighing 5lbs 4oz but didn't go to special care and he's a strong, healthy, bouncing 8 month old now :)
Comment by katie persinger on January 27, 2010 at 2:56pm
Hi Claire,
I had my K/Ptx at The John Radcliff Hospital in Oxford. Did the anti-rejection meds affect your little Boy?

Comment by Claire on January 26, 2010 at 11:56am
Hi Katie - wow another Kideny/pancreas UK transplantee! We are a rare breed it seems. I know of 2 other women who have had a baby after a K/P transplant, both successfully. My organs are placed sort of in front of my hip bones on either side so their position wasn't a problem when I was pregnant. The consultant did say however that it may get a bit crowded in there and in fact I had Luke at 34.5 weeks and he weighed only 5lbs 4oz but you should see him now! Where did you have your txplant? I had mine done at The Royal Liverpool.

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