Heart Transplant

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Join us if you received a heart or heart-double lung transplant

Website: http://transplantfriends.com
Members: 139
Latest Activity: May 9

15 members like this

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Don-shown in the above photo is the creator for this group.

Discussion Forum

new to this group

Started by Lisanicole. Last reply by Walt May 9. 9 Replies 0 Likes

Hello. My name is Lisa. I am on this site because my father is currently on IA at Columbia Pres waiting for a heart transplant. I thought I could find some good information for him here. My father…Continue

Allomap Testing

Started by Glenn. Last reply by Glenn Apr 22. 23 Replies 0 Likes

Hi All,I was wondering if any of you have any insight on Allomap testing. The way I understand it, it can eliminate the need for a biopsy, based on the results of a blood test. So far I have had 2 of…Continue

Rejection experiences

Started by Nancy. Last reply by Nancy Feb 14. 4 Replies 0 Likes

Hi everyone! I'm fairly new to Transplant Friends. I received my heart in Nov 2011 and I have been blessed to recover incredibly well and have had very few issues. I'm having my first bout of…Continue

Introduce Yourselves to our Heart Transplant Group

Started by Hostess Risé. Last reply by Glenn Dec 14, 2012. 11 Replies 2 Likes

Hey everyone I am New to this site ! Had My heart txp over 13 years ago ! Doing great ! Thanks to my donor and the great staff At CCF ! Went back to work full time 6 months after my txp ! But have…Continue

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Comment by Leslie Coolidge on May 6, 2013 at 11:46am: Hello, I am new to the site. I am need of a heart transplant my self, but the doc presented my case to the board this past week and they decided that I have to do cardio before they will place me on the list. Is this normal some times? I know I am not in good shape at all and I can not receive an LVAD because I still have a hole open in the heart and plus most are put in on the left mine would have to be on the right. so please give me any advice thank you very much

Comment by Joe on March 11, 2013 at 9:38am: My son (who is only 14 months post) went through a brief period where his kidney function began to suffer. We coordinated with the doctors to come up with a way to reduce his Prograf dosage and yet stay within targets. This happened in one manner because as he got further past transplant, his dosages decreased as his target decreased. The other way was to change from 2× to 3× daily. His total daily dose was decreased in this manner, as the more frequent schedule meant that trough intervals were decreased.

Comment by Carolyn on March 11, 2013 at 9:31am: Thak you for the encouraging words.

Comment by hearttxp on March 10, 2013 at 3:21pm: Carloyn Hang In there my friend. I did not have that problem But know many others who either had thier Kidney Txp or will soon. My Kidney function is all most Normal after 15 years post heart txp. But I suppose I may not be like most ? Just very very Lucky I suppose ?

Comment by Carolyn on March 10, 2013 at 3:15pm: I am 20 months post heart transplant and just found out this week that I will need a kidney transplant. Although Prograf prevented me from ever having a rejection episode, my gut and kidneys didn't do so well. I met one person in the linic who had a kidney transplant due to Prograf toxicity 5 years after his heart transplant. I am not in as good condition as I was prior to my heart transplant and my cardiologist is not in a hurry to expose me to high dose immunosuppression again. Besides i have a chronic staph infection of my chest wound (long story). ANyone in the group with heart and kidney transplants? Right now I'm feeling a bit like Humpty Dumpty.

Comment by hearttxp on December 23, 2012 at 11:34am: Linda there are plenty of them out there. I have many friends either at 20 or very close. I myself have 15 woderful years this April. Merry Christmas to All and a Very Happy New Year

Comment by Linda on December 23, 2012 at 10:40am: So happy to hear of a transplant patient has 18 yrs and still going strong. Thank you so much for sharing this with all of heart transplant recepants(spelled wrong had senior moment). Merry Christmas and a wonderful New Year!!!

Comment by Hostess Risé on December 11, 2012 at 3:54pm: Jim Gleason celebrates his 18th yr Heart Transplant Anniversary

Comment by Holly on December 10, 2012 at 9:07am: OK...seems I'm a little slow with this new forum! Just realizing I need to sign up again. DUH! So glad we still have our family here!