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CF Buddies who have had a double lung transplant help those who are waiting for their gift to Inspire and share our stories.
Latest Activity: Oct 22
Our Heart and Lung Forum on Transplant Friends
Childrens Organ Transplant Association
National Transplant Foundation
Started by Scott. Last reply by Hostess Risé Oct 22.
We are dealing with chronic rejection, doing Photopherisis weekly now and hopeful this will help. Been out over 14 years. CF. 53yrs old. Looking into second transplant but wondering if any of you…Continue
Started by Hostess Risé Jan 20.
Started by Hostess Risé Jan 4.
Transplant FamiliesJANUARY 2013 FAMILY…Continue
Tags: association, transplant, organ, childrens, cota
Started by Hostess Risé Dec 13, 2012.
For those of you curious readers out there, I suggest you check out my friends bloghttp://www.angelodistefano.com/He has Cystic Fibrosis and I have…Continue
Tags: stem, cells, Fibrosis, cystic, distefano
Kool! This is just what I've been looking for on this forum! It's good to know there are others out there in the same situation. My name is Pat, I live in Central Arizona. I had a double-lung trans on June 16, 2005. My trans didn't go as well as we planned but its OK- I'm still alive & doing pretty good for the most part. I've had more than my share of 'bumps in the road' but, that which doesn't kill ya is only supposed to make you stronger. Looking forward to hearing from all of you in similar circumstances. Take care, 'Pat'.
All websites are difficult to manage at first. Please stick around and give it time. Just click in the above comment box.
no worries, I did not receive any message from you just an introduction.
I am so happy you joined us:) Congratulations on receiving two new lungs.
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