Sharing Knowledge Is An Invaluable Experience
CF Buddies who have had a double lung transplant help those who are waiting for their gift. Inspire and share your journey.
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Started by Hostess Risé Jan 20.
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Transplant FamiliesJANUARY 2013 FAMILY…Continue
Tags: association, transplant, organ, childrens, cota
Started by Hostess Risé Dec 13, 2012.
For those of you curious readers out there, I suggest you check out my friends bloghttp://www.angelodistefano.com/He has Cystic Fibrosis and I have…Continue
Tags: stem, cells, Fibrosis, cystic, distefano
Started by Hostess Risé Aug 19, 2012.
http://ning.it/Nzxyly Here is a childrens story that I wrote back in 93 about the drug Pulmozyme.Continue
Kool! This is just what I've been looking for on this forum! It's good to know there are others out there in the same situation. My name is Pat, I live in Central Arizona. I had a double-lung trans on June 16, 2005. My trans didn't go as well as we planned but its OK- I'm still alive & doing pretty good for the most part. I've had more than my share of 'bumps in the road' but, that which doesn't kill ya is only supposed to make you stronger. Looking forward to hearing from all of you in similar circumstances. Take care, 'Pat'.
All websites are difficult to manage at first. Please stick around and give it time. Just click in the above comment box.
no worries, I did not receive any message from you just an introduction.
I am so happy you joined us:) Congratulations on receiving two new lungs.
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