Friends of Cleveland Clinic Foundation
Members: 33
Latest Activity: Apr 24
Started by Linda. Last reply by mark Apr 24. 22 Replies 0 Likes
Hello ! I was just wondering what everyones diag and LAS are ? if your comfortable responding to this question. What are you able to do ? I am getting more and more home bound it seems . I can go…Continue
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Comment by hearttxp on April 23, 2012 at 7:01pm well just had my 14 annivesary of my Heart TXP last week ! CCF is the best center in the country ! Feel free to contact me in any info is needed Pre or post ! I used to be voulnteer at ccf but things have changed there and am not one any more !
Comment by Phil on April 20, 2012 at 6:19am hello been out of touch comming up on 4 yrs. all the meds can be hard on the system, but all is good, still working on weight, its hard, phil
Comment by Teresa Doseck on April 16, 2012 at 7:33pm Amanda, she has a heart transplant. And thank you Robbie for the info on the dinners. We will definitely try this summer to attend some. Thank you all for your wonderful sharing in this group.
Comment by Judee on April 16, 2012 at 7:31pm Teresa & anyone, I am always available by email. I do not know how to navigate this site very well. Please email me directly, if I can help.
xChangeofHeart@yahoo.com I'll be in Cleveland area April 25th to May 15th.
Judee
Comment by Amanda on April 16, 2012 at 1:48pm The monthly heart transplant are held at the Clinic on the roof @ 6:3. Here is a list of dates for the remainder of the year. April 26, May 24, June 28, July 26, August 23, September 27, October 25, November 15, thr December Dinner is at 5:30pm in the Lerner Research builging @ main campus. Free parking for all dinners.
Comment by Teresa Doseck on April 16, 2012 at 12:34pm HI! We are new to Cleveland Clinic and looking to find a group that meets and has activities during the year. Our daughter is 10 years out of transplant and is now 20 yrs. old. We live about 4 hours away and need to have a few days planning time to attend any events, but would love to get to know the families here in Cleveland. We had very close relationships with families in Cincinnati where she had her transplant. Any information would be helpful. Thanks!
Comment by ORLAN W. HOLMES on February 28, 2012 at 8:53pm i get lost alot also judee
just keep trying. you can also email RISE and tell her your problems, she will try to make the web site more user friendly
Comment by Judee on February 26, 2012 at 3:41am I am not good at navigating this sight. It is so disjointed I get lost.
Comment by Judee on February 26, 2012 at 3:40am Can someone give me more info on this? I rarely see Kay anymore & usually in Cleveland at least twice a year. If I knew when the gatherings were, I could possibly plan my flights so I could attend. I would love to know more heart transplants from the Clinic.
Posted by Christine Hilton on May 15, 2012 at 12:15am 2 Comments 1 Like
Posted by Kristy on April 28, 2012 at 6:25pm 2 Comments 0 Likes
Posted by Susan on April 27, 2012 at 9:35pm 3 Comments 3 Likes
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