Hi Everybody,
For those of you that have had your transplants for awhile, I am wondering what you creatinine levels are? I was just transplanted 4 weeks ago and the lowest that mine has gotten is 1.76 and every time that they increase my prograf the creatinine goes up. The transplant clinic is saying that my creatinine needs to be below 1.5. I have asked what happens if it doesn't get there and they said that maybe it would indicate that the new kidney has an issue. I thought that 1.76 was great because my creatinine was 11.7 pre transplant. If you have had your transplant for many years do you remember what it started at and how is it now? Thanks for your input.
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Permalink Reply by David on January 31, 2012 at 10:30pm Hey Fred , as they cut back on your rejection drugs your levels will normal out , I had a heart tx 19 months ago . i was high also , now am down to 1.39, from like 6.0 , your tx cntr through blood test can tell if your kidney functions are ok, try not to worry its pretty much normal .. Have they expressed any worries or concerns ? ..
Permalink Reply by Barbie Bower Plecas on February 11, 2012 at 11:30pm I too would like to know what other friends #'s are. I am 19 yrs. out and mine is at 1.4 I was running at 1.0-1.3 but it has inched up to 1.4 and I was wondering if I need be a little concerned? I guess it doesn't matter if you're a new tx patient or many yrs out, we all get nervous when our numbers change. I don't take prograf though, I'm on Sandimune Cyclosporine and Imuran.
Permalink Reply by oowallst on March 31, 2012 at 10:18pm Hi Fred,
I received a kidney transplant on july 5, 2010 feel great, my creatinine level runs around 1.04 or so around that range, I do not remember what my creatinine level was prior I know it was not good i was on Dialysis forn 10 years prior to kidney transplant, please take care.
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