Hi Everybody,

For those of you that have had your transplants for awhile, I am wondering what you creatinine levels are? I was just transplanted 4 weeks ago and the lowest that mine has gotten is 1.76 and every time that they increase my prograf the creatinine goes up. The transplant clinic is saying that my creatinine needs to be below 1.5. I have asked what happens if it doesn't get there and they said that maybe it would indicate that the new kidney has an issue. I thought that 1.76 was great because my creatinine was 11.7 pre transplant. If you have had your transplant for many years do you remember what it started at and how is it now? Thanks for your input.

Views: 16769

Reply to This

Replies to This Discussion

 Hey Fred ,  as they cut back on your rejection drugs your levels will normal out , I had a heart tx 19 months ago . i was high also , now am down to 1.39, from like 6.0 , your tx cntr through blood test can tell if your kidney functions are ok, try not to worry  its pretty much normal .. Have they expressed any worries or concerns ? ..

I am 8 years post kidney transplant but when I first had my transplant it was 1.3 but once they adjusted my anti-rejection medication and stays at 0.8 unless I get an infection and then it will go up to 1.2 which isn't very often. I take prograf and cellcept twice a day two tablets.

I too would like to know what other friends #'s are.  I am 19 yrs. out and mine is at 1.4   I was running at 1.0-1.3 but it has inched up to 1.4 and I was wondering if I need be a little concerned?  I guess it doesn't matter if you're a new tx patient or many yrs out, we all get nervous when our numbers change.   I don't take prograf though, I'm on Sandimune Cyclosporine and Imuran.

Hi Fred,

I received a kidney transplant on july 5, 2010 feel great, my creatinine level runs around 1.04 or so around that range, I do not remember what my creatinine level was prior I know it was not good i was on Dialysis forn 10 years prior to kidney transplant, please take care.

8 years out, almost, kidney. From .8 to 1.1. Was about 7 pre-op but I am only 92 pounds. It took awhile  for mine to level out. hydration lowers creatinine and lower meds.

Had transplant from cadaver organ donor DEc. 20th 2011 . Lowest my creatine has got is 2.29. Doctors are not to worried but hope it keeps coming down .

Hi Fred, I  had my kidney transplant Nov-2009.  Tuesday I had my doc's apt- my creatinine was  1.69 and I see my Doctor every 8 to 9 weeks  prior visit was 1.52 thus far it basically stays in this area I don't remember what it was prior sure it was really up there.  I take 1mg -caps  5capsules twice daily & 0.5mg 1 capsule twice daily.  I have been taking that for over a year. (Tacrolimus-)

I will be 8-years post transplant on July 14th. Creat is 1.1 - 1.3 while taking 2-mg prograf 2x daily......tacro will fluctuate with changes in metabolism..... I get test monthly. I've had two rejection events related GI issues associated with meds..... Which has been resolved for the most part..... Every transplant patient if effect has chronic rejection.... And by definition all transplant patients still are categorized as still being in ESRD...... With he transplant being a therapy......so trust in your doctors as they manage you and your transplant..... Having a transplant comes with challenges

Hi Fred

I just celebrated my 15th anniversary with my kidney  Congratulations on your new kidney  Like you I am on Prograf 3mg twice a day It took awhille for my creatinine to go down It now runs between .7-.9  It takes time You are right 1.76 is great but most nephrologists would like it lower  Give it time and your body to adjust to the meds. Stay the course take your meds everyday and try to live a healthy lifestyle. Anything is better than dialysis.

Hi Barbara,
I just had my Kidney transplant on December 27th, 2012. My cousin was my perfect match: I live in Michigan, she lives in Florida and we had our surgery in Madison, Wisconsin.
Among other meds, I am also taking Prograf (Tacrolimus) 5 mg/day, 3 mg in AM and 2 mg in Evenings.
I am one of those lucky ones who did not have to be on Dialysis, even though my Creat pre surgery was almost 8, BUN was 110's and eGFR 7. Now, these same labs are 1.76, 25 and 41. I have been kind of "concerned" because creat does not goes lower than what I would like to see it (let's say lower than the 1.5'ish). It stays mostly between the 1.90 and 1.80 for the most part. My coordinator over UW keeps telling me that she's not worried about the results being the way they are because it fluctuates 0.2-0.3 up/down: that as long as it stays with a creat lower than 2, she is ok with these results.
Your comment got me relaxed, knowing that these results can and will go down , but it will take some time.
I am very excited about having this new opportunity and able to read from others who have gone thru the same I am going thru and can share their experiences with those of us who are experiencing it for the first time.
Thanks

Im going on my 10th yr post kidney transplant and mine runs about 1.2 if it creeps up it could be due to a number of thing. For instances, mine went up one or two times n it was due to not drinking enough water and turned into a kidney infection. i am back at 1.2 leval and heading to Atlanta Piedmont for my 10yr check up. Talk with your kidney specialist n see what he or she saids for everyone is a bit different n taking different meds. I too get my local lab for a kidney specialist every 3 months.


 
Barbie Bower Plecas said:

I too would like to know what other friends #'s are.  I am 19 yrs. out and mine is at 1.4   I was running at 1.0-1.3 but it has inched up to 1.4 and I was wondering if I need be a little concerned?  I guess it doesn't matter if you're a new tx patient or many yrs out, we all get nervous when our numbers change.   I don't take prograf though, I'm on Sandimune Cyclosporine and Imuran.

At 10 1/2 years out with a new kidney mine ranges from 1.1 - 1.4.  Of course I prefer 1.1 but these aren't terribly bad numbers.

RSS

© 2014   Created by Hostess Risé.

Badges  |  Report an Issue  |  Terms of Service